SPECIAL NEEDS UNITED GRANDPARENTS (SNUG)

Special needs information sharing website and Grandparents support group

M & S AND ME

Inspired by her Grandson this lady has sucessfully campaigned to get a high street retailer to supply specialist clothes for children with additional needs.  This is her story….

My grandson Caleb had a very difficult start to life, and was in hospital for 10 weeks following his birth.

Last year in March 2015 when he turned three, his mum Zoe and I started looking for clothes to accommodate his feeding tube and nappies. Until then, we’d been able to buy clothes from the high street stores and supermarkets here in England.
To my dismay, after looking in stores and online, I found nothing available for his age and size. I tried parenting websites for advice, but soon realised that we could only buy them from speciality catalogues.
Parents and carers told me they were buying from the United States, as even with postage it still worked out cheaper than buying from the local catalogues. Others were using expensive dressmakers to alter their children’s popper vests and sleeping suits by adding material so that they would fit for longer.
Disability catalogues have to charge more because their products are specially made. The cost of a popper or snap vest was about £12 in the catalogue, whilst up to age 3 we could buy them for just over £1 in our regular stores.
I was concerned about how my family would afford this new clothing? Caleb’s mum had given up work to care for him. And they were paying for private physiotherapy for Caleb, who is still not able to crawl, sit, stand, walk or even have full control of his head. The cost of this new clothing was a huge worry.
I started to wonder, couldn’t the regular clothing, now available up to age 3, be made a little bit bigger, with extra material and at a fairer price?
I decided to campaign for more affordable clothing in larger sizes and asked Marks and Spencer if they would help. I chose them because they’re a global company and that meant more children and families would benefit. They have dedicated websites in Australia, New Zealand, Canada and the United States, and they deliver free when you spend $50. They also deliver to over 30 countries at varying cost. Marks and Spencer have a great reputation for quality and are a respected company that started out in Leeds, which is my home town. I thought if they were able to order them by the thousand, then surely they would be priced lower.
I wrote to their customer services’ team, and they promised to pass my e-mail onto their buyers. They quickly came back to me and said that they were interested in my proposal and were hopeful they could help.
Soon they were sending sample suits for Caleb to try. My daughter-in-law Zoe has been able to give very positive feedback and has made suggestions about how the clothing can be tweaked. For example, the neck area was a little too large in one item, so they made the opening smaller.
Zoe asked if they could also do styles for older children and Marks and Spencer got in touch with the disability charity Scope UK for advice from families. Scope arranged for parents from their online community to trial sample sizes with their children and send in feedback too, which has all helped to shape the products.

The new range of clothing, launched in February, is more than I ever hoped for!

Initially I just asked for popper vests for older children. Marks and Spencer have gone above and beyond by also making sleeping suits, long and short sleeve items, all-in-ones, and all with easy accessibility for nappy changing and tube feeding. Two of the items have poppers/snaps across the tummy for a feeding tube. They were made for children aged 3 to 8 initially but have now extended it to 16 yrs
The older children’s styles/colours are age-appropriate. The clothing is great quality and affordable, and prices start from just £3.
I have to admit that a month or two after contacting Marks and Spencer, I had a little wobble and thought, “What if other families don’t feel the need for these clothes?” I asked the company if I could tell people on my personal Facebook page and on Leedsface, about what was happening and they said yes.
In a few days I had over 30,000 responses! There were friend requests from strangers and messages from around the world, including India, Spain, Portugal, New Zealand, Australia, the United States, Indonesia and Ireland. All wonderful messages of encouragement that made me realise I had done the right thing, and that thousands of children and their carers would benefit.
People also shared ideas of their own, and it convinced me that we should be pushing ideas to other businesses. After all, if we don’t let them know what’s needed, then how are they going to help?
I decided to set up a Facebook Group entitled M&S and Me: Special Needs Clothing for Children so that everyone could put forward their thoughts. We have nearly 9,000 members and are still growing. Anyone wishing to be kept updated please join. The retailer is in the process of producing more clothing, different styles and colour.
We’re hopeful that this much more affordable clothing for Caleb will be a weight off his parents’ minds, and will help them continue with the private physiotherapy he so needs. Caleb has profound and complex needs. I know lots of families will have their own individual expenses to accommodate their children’s needs. So this should also help them too.
The attention to detail and quality of clothing is what Marks and Spencer do best. This new adapted line has been so popular that many items sold out within hours of the launch but they have since been restocked. The demand has been unprecedented, which is heart-warming for me.

Thank you Marks and Spencer, for making this happen.

I am one very proud Grandma. xxxx

You can join Rita’s Facebook Group by following this link  facebook.com/groups/1690790521200836

 

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