SPECIAL NEEDS UNITED GRANDPARENTS (SNUG)

Special needs information sharing website and Grandparents support group

CHARITIES/ORGANISATIONS

IF YOU WISH TO ADD ANYTHING TO THIS LIST THEN PLEASE GET IN TOUCH WITH THE DETAILS –

AUTISTIC SOCIETY  http://www.autism.org.uk/ We are the leading UK charity for people on the autism spectrum (including Asperger syndrome) and their families. We provide information, support and pioneering services, and campaign for a better world for people with autism.

BESPOKE BEFRIENDING & SUPPORT LTD.  www.bespokebefriendingltd.org Tel: 07724174669 Unique person centered care service promoting social inclusion through choice.  Based in Stone, Staffordshire UK

CHASE ACTIVE (at Chase Leisure Centre, Cannock, Staffs UK)  Activities for adults with disabilities (every Friday – excluding Bank holidays. Times 10am – 3pm.  Contact Debbie Pearce on 01543 501520

CHASE LEISURE CENTRE SENSORY ROOM – A state of the art sensory room at Cannock Chase Leisure Centre, Cannock, Staffs  For details contact Hayley Turner – Sensory Room Supervisor email hayley.turner@wlct.org.

CHUCKLE PRODUCTIONS: http://www.chuckleproductions.org or Tel 07837 741510   Creative workshops and activities from babies to teenagers.  Workshops include exploring music, dance, song writing or film making plus many more. Based in Stone, Staffs. UK

CONTACT A FAMILY  http://www.cafamily.org.uk/  support and information for families of disabled children.

DISABILITY ADVENTURES  http://www.disabilityadventures.co.uk/ based on Cannock Chase, Staffordshire, UK  Disability Adventures Ltd is a new venture dedicated to the health and wellbeing of those with learning or physical disabilities through the use of outdoor activities. We offer a range of exciting & exhilarating day opportunities to enable participants to lead a full and active life to meet personal aspirations, delivering meaningful outcomes and fulfilled days.

DISABILITY OPEN SWIM at Chase Leisure Centre, Cannock, Staffs (UK).  Tuesday 6.30-8pm teaching pool or 7-8 main pool. Contact Chase Leisure Centre on 01543 504065 or email c.gibson@wlct.org.

EASYLINK UK http://www.easylinkuk.co.uk/ a range of products from seizure detectors to speaking reminder clocks.

FRIDAY CLUB PARENT/CARER SUPPORT GROUP  The Friday runs from 9.00-12.00 every Friday during term time at CHARNWOOD CHILDREN’S CENTRE, LICHFIELD, STAFFORDSHIRE UK.  It is very informal and you are welcome to drop in at any time during the sessions.  They offer support, information, guest speakers, friendship and a good chat. No charge and free refreshments. email suef@rocklands.staffs.sch.uk or go to http://www.fridayclubrocklands.com

KATHRYN’S SPECIAL NEED COMMUNITY ADVICE GROUP. LINK TO FACEBOOK PAGE   This is a newly created Facebook group made by Kathryn #Roe.  Kathryn is a 24 year old special needs adult who’s mission is to help families and caregivers of special needs children get much needed help support and advice.  The group is open to anyone who has a child or children with special needs from birth to age 21 years.  This is a mixed group for all kinds of special needs, medical conditions and disabilities.  Click on the link above and request to join and one of our admins will be happy to add you and help with any problems.

LIBERTY – STAFFORDSHIRE   http://www.libertystaffordshire.com  “Developing opportunities for young people and adults with learning, physical and emotional barriers.” Staffordshire area UK only

M&S AND ME SPECIAL NEEDS CLOTHING FOR CHILDREN  a campaign to get affordable accessible clothing for children with various medical needs such as peg fed, still in nappies etc. M & S have agreed to make a new special needs clothing line for older children and they should be available from the Spring (2016).  To keep updated about this campaign please visit the Facebook Group M&S AND ME special needs clothing for children and ask to join.

MORE THAN WORDS  http://www.morethanwordscharity.com/  founded by Paul & Hannah Hughes after being inspired by their daughter Gracie. They offer Makaton Sign Lanquage Courses in various areas.  If you are interested in finding out more about Makaton or anything else about this charity then visit their website

MAKATON CHARITY  http://www.makaton.org/ web page for the Makaton Charity. Advice and information on Makaton Sign language plus various books and other rescources which can be purchased.

NEWLIFE CHARITY http://www.newlifecharity.co.uk/ 

Newlife is the UK’s largest charity funder of children’s specialist disability equipment. They also run the UK’s only national emergency equipment service, for terminally ill children. You can also chat to a Newlife Nurse if you have any worries or concerns.

PYJAMA FAIRIES http://wrappyjamafairies.co.uk/   or FACEBOOK PAGE  https://www.facebook.com/groups/wrappyjamafairies/Pyjama Fairies was founded in May 2015 to bring comfort and support to young patients and their families in hospitals in the UK. Their pyjamas are specially designed with front opening to make dressing easier and to allow ease of access for the medical professionals. Their surgical gowns are made in beautiful, bright and fun fabrics so that they can relieve some of the fear that the children may have.

REFLEXOLOGY:  http://www.functionalreflextherapy.co.uk/ The Functional Reflex Therapy framework for Reflexology is designed for children and adults with autism, learning difficulties, special educational and additional needs and is proving an enjoyable beneficial experience for more vulnerable adults with dementia and Alzheimer’s.  If you are looking for a therapist in your area then this website does have a list of people registered with them.

SQUARE PEG FOUNDATION CIC  http://www.squarepegfoundation.ork.uk based in Sutton Coldfield, family run not for profit organisation focusing on enableing children with additional needs to access appropriate leisure facilities.  Awareness raising clothing line (See Bespoke Items in Menu for details)two caravans, sensory bus.  Stay and play in school holidays and “I CAN..” structured physical activity club in school time and sensory Santa at Christmas (see What’s on in your Area section for details).  Local Facebook page https://www.facebook.com/groups/squarepegswm/ or contact Sharon Needham 0121-572-5679.

STAFFORDSHIRE CARES ASK SARA http://www.asksara.dlf.org.uk/ The ASK SARA feature on the Staffordshire Cares website enables you to search for equipment etc., that is on the market that is suitable for a particular need.  Just pick a topic and answer a few simple yes/no questions and a report will be generated giving various options.  YOU DO NOT HAVE TO LIVE IN STAFFORDSHIRE TO USE THIS, JUST CLICK THE BUTTON “THIS IS NOT MY AUTHORITY” AND YOU WILL BE TAKEN TO ANOTHER PAGE.

 SWAN UK  http://www.undiagnosed.org.uk/ SWAN UK (Syndromes Without A Name) is an initiative run by the charity Genetic Alliance UK offering support and information to families of children with undiagnosed genetic conditions.

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